Earlier this year a much-needed report was written about the dual impact that being both BME (Black or minority ethnic) and disabled has on people. This report, called “Over-looked Communities, Over-due Change” was jointly published by Scope and the Equalities National Council. Of the roughly 11 million disabled people in the UK, at least one million are from Black or ethnic minority communities. There was a need to find a greater understanding of how this group feel about the services available to them so they can be improved.
In-depth focus groups uncovered the difficulties faced by many BME disabled people, such as communication and language difficulties, stigma (most disabled people report negative responses from others, but BME disabled people face a double stigma), social isolation (unlike some other studies there was little evidence that extended families offered extra support), inconsistent quality of care and weak links between services and communities.
Disabled people anyway are much more likely to live in poverty than non-disabled people, but BME disabled people are disproportionately affected with nearly half living in poverty. In the UK, 44% of BME disabled people live in household poverty, compared with 32% of all disabled people and 17% of the population as a whole. Like all disabled people they can find themselves socially excluded and pushed to the fringes of society.
A not surprising conclusion of the study was that person-centred, local and flexible services would be more valuable and accessible for BME disabled people, and of course accommodating individual preferences would benefit all disabled people.
Recommendations for service providers suggest that service provision should be:
1) Person-centred – Engage with user-led organisations to better understand the cultural dimensions of person-centred planning, and improve the planning process.
2) Local – Support existing BME disabled people’s organisations and build better working links between local agencies to create a better local offer, share knowledge more effectively and capacity build DPOs to help deliver better outcomes.
3) Advocacy – develop networks of community and self-advocates, who can play a critical role in improving service access and outcomes for BME disabled people.
4) Translation – refresh translation strategies, and work with communities to develop more effective pre-translated materials.
5) Outreach – improve outreach into local communities through strong partnership working with local organisations and employ dedicated outreach workers, who should also contribute to the development of community support networks.
The report also contains recommendations for policy-makers and service commissioners.
Let’s hope these recommndations are adopted and, just as importantly, adequately funded.
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